# Collaborators

Advancing pediatric rare disease research through collaboration 

RareKids-CAN works alongside a national and international network of partners committed to improving pediatric rare disease research and clinical trials. By bringing together expertise across research, health care, patient advocacy, and clinical operations, we help strengthen collaboration and reduce barriers to advancing treatments for children and families.  

Our network is built on partnerships, shared knowledge, and a collective commitment to improving outcomes for children living with rare diseases.  

Host Institute

RareKids-CAN is hosted by the Maternal, Infant and Youth Research Network (MICYRN), that provides operational leadership, infrastructure, and administrative support.

Clinical Trial Unit Sites

Our network includes clinical trial units and research sites across Canada with expertise in pediatric research, clinical trial operations, and rare disease care. These sites help support trial delivery, collaboration, and access to research opportunities for children and families nationwide.

Partner with our Network

Patient Organizations

Patients and families are central to everything we do. RareKids-CAN collaborates with patient organizations and advocacy groups to support meaningful engagement, improve research participations, and ensure that patient and family perspectives are reflected throughout the research process. 

Join our patient organizations

Cystic Fibrosis Canada

Immunity Canada

MS Canada

Sumaira Foundation

Cure SMA Canada

Muscular Dystrophy Canada

Canadian Alliance for Rare Disorders of the Skeleton (CARDS)

CANadian Aortopathy and Connective Tissue Disorders Registry (CAN-ACT)

Canadian Organization for Rare Disorders (CORD)

Congenital Hyperinsulinism International

KidsCAN

Foundation for Prader-Willi Research (FPRW)

Research Networks

We work with Canadian research networks, institutions, and health care partners to strengthen collaboration, share expertise, and build capacity for pediatric rare disease clinical trials and research.

Become a research partner

Canadian Pediatric Endocrinology Group (CPEG)

Canadian Society of Systemic Autoinflammatory Diseases (CanSSAiD)

Network of Networks (N2)

Stem Cell Network

Clinical Immunology Network - Canada

Canadian Consortium for Children’s Bone Health (CCCBH)

Inform Rare

Neuromuscular Disease Network for Canada (NMD4C)

Care4Rare-Solve/ all for one connect

International Collaborations

Rare diseases do not stop at borders. RareKids-CAN collaborates with international organizations, networks, and research initiatives to support global knowledge sharing, innovation, and opportunities for collaboration in pediatric rare disease research.  

Become an International partner

Critical Path Institute (C-PATH)

European Clinical Research Infrastructure Network (ECRIN)

European Rare Disease Research Coordination and Support Action (ERICA)

conect4children (c4c)

European Joint Programme on Rare Diseases (EJP RD)

National Organization for Rare Disorders (NORD)