# Home Accelerating hope for children with rare diseases in Canada Approved treatments exist for fewer than 5% of rare diseases. RareKids-CAN is working to change that by advancing clinical trial readiness and expanding opportunities to receive cutting-edge therapies. Learn more about us See our priorities 16 Affiliated pediatric research institutions across Canada 180+ Experts in pediatric research in Canada 16 Clinical Trial Navigators 40+ Patient & family partners RareKids-CAN 2026 Conference Join us virtually or in person in Ottawa at this year’s annual conference. Over two inspiring days, you’ll connect, collaborate and learn about the future of pediatric rare disease care. Register Today Who we work with RareKids-CAN brings together researchers, health care teams, patients and families, and industry partners to simplify and streamline pediatric rare disease research in Canada. Researchers Connect with our national clinical trial infrastructure, expertise network, and shared resources to advance your pediatric rare disease clinical trial. Access our inventory of pediatric rare disease protocols and searchable databases, rare disease research tools, and our free support services. Find out more Biotech and Industry Partner with our national network to accelerate pediatric rare disease clinical trials across Canada. Access experienced investigators, trial ready sites, and a coordinated national expertise to streamline feasibility, site selection, and study start-up. Find out more Patients and Families Accessing trusted information and resources to help you navigate your rare disease research journey shouldn’t be difficult. Explore patient registries, research opportunities, and find tools designed to support informed decisions for children and families at every stage. Find out more 1 in 12 Canadians are affected by a rare disease, and two-thirds of these diseases manifest in childhood. Our databases support your research Take a look through our databases to find rare disease registries, clinical trials, and research resources. Patients, families, healthcare professionals and researchers Explore rare disease registries Researchers Build your Rare Disease Registry Toolkit Researchers Search pediatric Rare Disease clinical trial protocols and reports Patients, families, healthcare professionals and researchers Discover ongoing pediatric rare disease clinical trial opportunities in Canada Affiliated Institutions We are partnered with 16 pediatric research institutions and their affiliated hospitals across Canada, uniquely positioning us to facilitate meaningful connections between investigators and collaborators. We have a database with over 180 investigators and experts from these institutions who are ready to collaborate on your project. Explore our affiliated institutions Clinical Trial Navigators Our 16 Clinical Trial Navigators are key connectors within the RareKids-CAN network. Embedded within our affiliated institutions across Canada, they bring incredible value as research managers and coordinators, to help connect their local investigators with clinical trial opportunities, foster collaboration, and advance pediatric rare disease research. Meet our Clinical Trial Navigators Get involved Advancing pediatric rare disease research takes collaboration. Whether you are a researcher, clinician, industry partner, patient, caregiver or advocate, there are many ways that you can contribute to RareKids-CAN and support research across Canada. Partner with us Collaborate with RareKids-CAN to help strengthen pediatric rare disease clinical trials, research infrastructure, and national connections across the research ecosystem. Explore partnerships Participate in a study Learn about opportunities to participate in pediatric rare disease research in Canada and explore clinical trials that may be relevant to you or your child. View opportunities Join our expertise database If you are an investigator or expert in clinical trials, we welcome you to share your expertise and interests to help support future research collaborations, initiatives, and opportunities across the RareKids-CAN network.  See what's involved The latest news from RareKids-CAN View all News