IMPaCT Training Program Busisiwe Zapparoli: Advancing Equity and Outcomes in Rare Disease Research
For many children living with rare conditions, the biggest challenges aren’t always the ones you see on a chart; they…
Category: News
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IMPaCT Training Program Wallace Wee: Seeing What Matters in Pediatric Research
Progress in rare disease research rarely comes from a single breakthrough, it’s built through persistence, curiosity, and a commitment to…
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Rare Disease Day Celebrations 2026
On February 28th, the RareKids-CAN community came together in a powerful show of collaboration and progress to celebrate Rare Disease Day…
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Why Caregiver Voices Matter in Global Rare Disease Research
Genevieve Currie (left) and Leah Sarah Peer (right) have joined the Global Rare Disease Priority Setting Partnership Steering Commitee at…
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RareKids-CAN Leaders Present Vision for Advancing Pediatric Clinical Trials at ACCESS Annual Meeting
RareKids-CAN Network Director Breanne Stewart and Nominated Principal Investigator Dr. Thierry Lacaze recently presented at the Advancing Childhood Cancer Experience, Science &…
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Key Considerations for Rare Diseases in First Nations* Populations in Canada
By The RareKids-CAN Indigeneity sub-platform teamRare Disease Day reminds us that equitable care means recognizing the unique needs of Indigenous…
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RareKids-CAN Open Call: Sponsored American Society for Gene & Cell Therapy – Attendance for Pediatric ATMP Clinical Trial Professionals
Background RareKids-CAN (RKC), in partnership with MICYRN, is advancing Priority 1 of its Strategic Plan, which focuses on strengthening pediatric rare…
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Highlighting the RKC Indigenous Community Engagement Team and its Navigator
Image of members of Pewaseskwan and Indigenous Community Guiding Circle Knowledge Holders Since RareKids-CAN launched in 2024, the Equity, Diversity,…
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Highlighting Youth Partner, Simone, for International Youth Day!
Headshot of Simone Kumar, Youth Partner Meet SimoneMeet Simone – one of RareKids-CAN’s youth partners! An enthusiastic undergraduate student at…
