Statement on Health Canada’s pilot to reduce regulatory barriers to pediatric standard of care clinical trials
On October 14, 2026, Health Canada announced a pilot program to reduce barriers for select academic-led peediatric standard of care…
News
Read the latest from RareKids-CAN.
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Reflections from EURORDIS Open Academy: Learning, Partnership, and the Future of Rare Disease Engagement
Investing in patient and family leadership is essential to advancing rare disease research, care, and treatment. Through RareKids-CAN's Patient and…
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Key Takeaways from the American Society of Gene & Cell Therapy 2026
RareKids-CAN was pleased to sponsor two of our Clinical Trial Navigators, Cara Grobbecker and Faiza Khawaja to attend the American…
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Canadian National Mirror Group Contributes to International Discussion on Rare Disease Registries
The Canadian National Mirror Group (NMG), led by RareKids-CAN, is helping ensure Canadian perspectives are represented in international efforts to…
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New Paper Provides Practical Guide to Cell and Gene Therapies in Pediatric Rare Disease Research
Cell and gene therapies are rapidly transforming the pediatric rare disease treatment landscape and are offering new possibilities for conditions…
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Thierry Lacaze Highlights the Importance of Global Collaboration at the World Orphan Drug Congress USA
RareKids-CAN Nominated Principal Investigator and MICYRN Scientific Director Dr. Thierry Lacaze recently joined international leaders in a rare disease research,…
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Rewriting Rare Disease Care: How Collaboration and Clinical Trials Are Transforming Pediatric Research and Access to Treatment
Canada is entering a new era in pediatric rare disease research, driven by advances in precision medicine and novel, innovative…
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Connecting Families to Opportunity Through Clinical Trials: Q&A with Daislyn Vidal, RareKids-CAN Clinical Trial Navigator
Clinical trials can play a critical role in improving access to treatments and advancing care for children living with rare…
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Building National Readiness for Pediatric Rare Disease Trials: Q&A with Davy Eng, RareKids-CAN Clinical Trial Navigator
RareKids-CAN’s Clinical Trial Navigators help strengthen pediatric rare disease clinical trial readiness across Canada by supporting study start-up, facilitating collaboration…
