RareKids-CAN Represents at the 6th Nordic Conference on Pediatric and Orphan Medicines
RareKids-CAN Nominated Principal Investigator Dr. Thierry Lacaze and Network Director Breanne Stewart attended the 6th Nordic Conference on Pediatric and Orphan…
Category: News
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Patient Partner Spotlight: Advocating for Timely Access to Clinical Trials in Canada
We are proud to highlight a recently published article featuring one of RareKids-CAN’s dedicated patient partners, Maureen Smith. In the…
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Success Story – When Standard Treatments Fail: A Case for Virus-Specific T Cell Therapy
Key Takeaway:Virus-specific T cells (VSTs) used to successfully treat a newborn with a life-threatening CMV infectionRareKids-CAN and the Riddell Centre…
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RareKids-CAN 2025 Conference Recap: A Celebration of Connection, Collaboration & Progress
Earlier this month, the RareKids-CAN community came together to connect, collaborate, and learn—both in person in Ottawa and virtually from…
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Celebrating Rare Disease Day 2025
This past Rare Disease Day on February 28, 2025, our team came together to raise awareness, share patient and family…
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Congratulations, INFORM RARE Youth Advisory Group and Dr. Lauren Kelly, for their 2024 IHDCYH Talks competition awards!
RareKids-CAN is thrilled to congratulate INFORM RARE’s Youth Advisory Group for placing first in the video category of the IHDCYH…
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The Maternal Infant Child & Youth Research Network signs Memorandum of Understanding with the European Clinical Research Infrastructure Network
On 27 December 2024, ECRIN and MICYRN signed a Memorandum of Understanding (MoU) with the intention of better aligning their…
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Congratulations, Maureen Smith!
RareKids-CAN is thrilled to extend our happiest congratulations to Maureen Smith on her new position on the Board of Directors…
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Family Partner Update: Jakob and Andrea
We are happy to share an update from Andrea and her son Jakob, one of our incredible family partners on…
