We are grateful for the following affiliations and collaborators.

Host Institution

Clinical Trial Unit Sites

Patient Organizations 

Cystic Fibrosis Canada 
Immunity Canada 
MS Canada 
Sumaira Foundation 
Cure SMA Canada 
Muscular Dystrophy Canada 
Canadian Alliance for Rare Disorders of the Skeleton (CARDS) 
CANadian Aortopathy and Connective Tissue Disorders Registry (CAN-ACT)  
Canadian Organization for Rare Disorders (CORD) 
Congenital Hyperinsulinism International  
KidsCAN 

Research Networks 

Canadian Pediatric Endocrinology Group (CPEG) 
Canadian Society of Systemic Autoinflammatory Diseases (CANSSAID) 
Network of Networks (N2) 
Stem Cell Network 
Clinical Immunology Network- Canada 
Canadian Consortium for Children’s Bone Health (CCCBH) 
INFORM Rare 
Neuromuscular Disease Network for Canada (NMD4C) 
Care4Rare-SOLVE/ All for One Connect 

International Collaborations 

Pediatric Trials Network (PTN) 
Critical Path Institute (C-PATH) 
European Clinical Research Infrastructure Network (ECRIN) 
European Rare Disease Research Coordination and Support Action (ERICA) 
conect4children (c4c) 
European Joint Programme on Rare Diseases (EJP RD) 
National Organization for Rare Disorders (NORD)