Participation Opportunities
Participation in research helps advance knowledge, improve care, and create better treatment options for children with rare diseases. Explore opportunities to participate inclinical trials, and research activities taking place across Canada.
Find the right clinical trial for your child
Search active clinical trials in Canada by condition to explore study details, eligibility criteria, and contact information. Use our clinical trial database to find trials that may be relevant to you or your child.
Can’t find a clinical trial opportunity just yet?
Patient registries collect information about people living with a specific rare disease to support future research, improve care, and advance new therapies. Browse available registries to find one that may be relevant to you or your child.
Featured Opportunities
Explore research opportunities seeking participants shared by investigators across the RareKids-CAN network. If you are an investigator and are interested in featuring your research opportunity, contact the RareKids-CAN team to have your opportunity posted.
A Randomized Placebo-Controlled Trial of Sertraline vs. Placebo in the Treatment of Anxiety in Children and Adolescents with Neurodevelopmental Disorders: The “CALM” Study
Participate in the CALM study testing a medication called sertraline to see if it reduces anxiety in youth with neurodevelopmental disorders.
Assessing the need for pediatric gait analysis in Saskatchewan: A mixed methods needs assessment
Researchers at the University of Saskatchewan are conducting a study on pediatric walking assessments. This study aims to identify service gaps, access barriers, and priorities for pediatric walking assessment to develop an equitable, province-wide pediatric walking assessment strategy.
Arts-based digital knowledge translation tools for parents
We are a group of researchers at the University of Alberta who develop educational resources for parents using art and digital platforms. These resources incorporate the use of stories to communicate health information as a way of reducing uncertainty and improving knowledge around going to the emergency department.
The Relation between Brain Activity and Nutritional Status in Children and Youth
This study is about investigating the relation between brain activity and nutritional & metabolic status.
Rare Disease Patient Experiences, Interests and Preferences in Pharmacology Education (RKC Pharm Ed)
A study team at SickKids is inviting parents and children living with rare diseases to take part in a study aimed at improving how families learn about medications. They want to better understand your experiences with self directed learning about pharmacology (medications) and identify which topics matter most to you.